Archivi categoria: English

The book

cover_ok

Always Live Smiling is the book written by Marco.
The initials are the same as in ALS. Amiotrophic Lateral Sclerosis, the “bitch”, as Stefano Borgonovo called it.
Marco was diagnosed in 2008 after a very full youth made of sports, many friends, an irresistible thirst for people and places. A hunger for life that doesn’t fade, emerging from the pages of the book: thoughts, memories, posts published on his blog, short and autobiographic stories that plunge us in Marco’s existence. A man well determined to keep fighting.

Marco’s book (English version) is on sale at Amazon.com

Events

http://gazzettadimantova.gelocal.it/mantova/cronaca/2015/02/20/news/sguaitzer-tra-gli-studenti-non-arrendetevi-1.10904074#gallery-slider=undefined

Posted by MARCO S. – NO ALLA SLA on Sunday, February 22, 2015

Saturday Dec. 27th, 2014,  2 PM, Mantua, Centrale Te field,
charity match for Marco S. – NO ALLA SLA.

match 27 dec

Thursday Dec. 4th, 2014, 8PM
Il Cigno Restaurant, Mantua
Christmas Dinner.

locandina 4 12 14

 

Wednesday Dec. 3rd, 2014.
Presentation of Marco’s book.

Diapositiva1

 

 

News

This award for social engagement for 2016 has been given to me, but it goes entirely to the Marco S. – NO ALLA SLA Onlus…

Posted by Marco Sguaitzer on Wednesday, March 29, 2017

http://gazzettadimantova.gelocal.it/mantova/cronaca/2015/02/20/news/sguaitzer-tra-gli-studenti-non-arrendetevi-1.10904074#gallery-slider=undefined

Posted by MARCO S. – NO ALLA SLA on Sunday, February 22, 2015

E' stata un successo la gara di ieri 25 gennaio, organizzata a favore dell'Associazione 'No alla Sla- Marco Sguaitzer'….

Posted by Golf Nazionale on Monday, January 26, 2015

dategli una occhiata… la merita tutta !

Posted by MARCO S. – NO ALLA SLA on Thursday, January 8, 2015

Quest'anno il Vin Brulé della Vigilia sponsorizza l'Associazione Marco S. – NO ALLA SLA. Venite a rifocillarvi e a sostenerci!

Posted by MARCO S. – NO ALLA SLA on Thursday, December 18, 2014

http://www.imurr.com/wishlist-i-murr-x-charity-senza-limite-alcuno/

Cena per Marco Sguaitzer e l'Associazione Marco S. – NO ALLA SLA. Ristorante Il Cigno, Mantova. 4 dicembre 2014. Un grazie a tutti e appuntamento alla prossima volta!

Posted by MARCO S. – NO ALLA SLA on Friday, December 5, 2014

http://gazzettadimantova.gelocal.it/mantova/cronaca/2014/12/03/news/l-inno-alla-vita-di-sguaitzer-e-boninsegna-gli-dona-la-maglia-della-nazionale-1.10428280

grazie Tre, grazie Holly, speriamo di aiutarci a vicenda !!!

Posted by MARCO S. – NO ALLA SLA on Sunday, November 30, 2014

Un grazie di cuore agli amici che si sono dati da fare per coinvolgerci in questa iniziativa.L'Associazione,…

Posted by MARCO S. – NO ALLA SLA on Sunday, November 16, 2014

Riceviamo e pubblichiamo da parte di Marco Sguaitzer:Ho appena visto questo film (visto metà sì, metà no, immaginate…

Posted by MARCO S. – NO ALLA SLA on Saturday, October 25, 2014

E' possibile effettuare donazioni di qualsiasi importo oppure diventare soci. Quota sociale: 150 euro. Associatevi e unitevi all'avventura!

Posted by MARCO S. – NO ALLA SLA on Wednesday, September 3, 2014

Dona con PayPal suwww.noallasla.itotramite bonifico bancarioBanca Popolare dell'Emilia Romagna filiale 11500 (sede…

Posted by MARCO S. – NO ALLA SLA on Tuesday, September 2, 2014

What is ALS?

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons carry nervous signals from the brain to the spinal cord and from the spinal cord to the muscles in the whole body. The progressive degeneration of the motor neurons in ALS eventually leads to their death.

When motor neurons die, the ability of the brain to start and control muscle movement is lost. Voluntary muscle action is progressively affected, resulting ultimately in total paralysis. The worst part is that all other neurological functions aren’t affected : the patient stays perfectly lucid, prisoner of a body that is less and less able to move.

ALS’ causes are unknown, but the disease is seemingly provoked by multiple causes and not by a single one. Among the most plausible causes are a genetic predisposition, an excess of glutamate, growth factors shortage, toxic-environmental factors and more.

ALS strikes mostly male and female adults older than 20 (more often 50 and older). In Italy three new ALS cases are declared every day, and there are 6-8 cases for every 100.000 people (source : AISLA).

Today no cure exists for ALS. The only medicine, able to slow down motor neuron degeneration, is riluzole. In recent years searches for a cure have multiplied, while scientists try to find products able to ameliorate patients’ quality of life in their vital functions (feeding, breathing…).

How to donate

Donate on-line
To make a donation on-line:  donare-eng

Donate by money transfer

BANCA POPOLARE DELL’EMILIA ROMAGNA

Account 0390 002235184

Name: MARCO S. – NO ALLA SLA

IBAN code: IT 36R0538711500000002235184

SWIFT code: BPMOIT22XXX

The association

Marco, for those who don’t know him, is an Italian former soccer player suffering from ALS since 2008. He lives in his hometown, Mantua. Once a tireless sportsman, now he’s unable to move. He lives thanks to artificial ventilation and a tube feeding him. All his mental faculties are intact.

How to show solidarity and love to a friend with an incurable disease, perfectly lucid in a body that doesn’t obey anymore?

That’s what we asked ourselves.

Marco already receives fundamental support and encouragement on social media, and his closest friends help him in more practical ways, but we decided to do something more.

The no-profit organization MARCO S. – NO ALLA SLA has three main objectives:

  1. Helping ALS patients, and among them Marco, from a financial point of view. Maybe many people aren’t aware of it, but suffering from ALS is a very expensive business : you need to have professional round-the-clock help at home, and people coming to your bedside daily for physical therapy and nursing care, there is expensive material to buy. And, by the way, you still have bills to pay to keep your house. Regional funding covers only a small part of these expenses (and has been cut drastically in 2014).
  1. Organizing fundraising events to raise consciousness, in Mantua but not only, about this terrible disease and to make Marco feel less alone in a tangible way.
  1. We also want to contribute to the fight against ALS giving a part of the money raised to other causes, working with other organizations, associations or individuals to became more efficient and make a difference

STATUTE »

Home

Marco, a formerly accomplished athlete from Mantua, has been suffering from ALS, a terrible disease, since 2008.
Our association wants to give a financial help to people suffering from ALS, to support research to find a possible cure, and to sensitize the public about this disease.

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http://gazzettadimantova.gelocal.it/mantova/cronaca/2015/02/20/news/sguaitzer-tra-gli-studenti-non-arrendetevi-1.10904074#gallery-slider=undefined

Posted by MARCO S. – NO ALLA SLA on Sunday, February 22, 2015

Un grazie di cuore agli amici che si sono dati da fare per coinvolgerci in questa iniziativa.L'Associazione,…

Posted by MARCO S. – NO ALLA SLA on Sunday, November 16, 2014

I’ve never done it, but today I feel like dedicating this post (a light one, it’s Sunday) to a Friend who this past week…

Posted by Marco Sguaitzer on Sunday, November 2, 2014

Leggete fino in fondo e… presto vi aggiorneremo su giorno e ora dell'asta on-line! http://www.jardinjoli.it/events/jardin-joli-nature-qualche-giorno-dopo/Grazie, Jardin joli 🙂

Posted by MARCO S. – NO ALLA SLA on Tuesday, October 28, 2014

Riceviamo e pubblichiamo da parte di Marco Sguaitzer:Ho appena visto questo film (visto metà sì, metà no, immaginate…

Posted by MARCO S. – NO ALLA SLA on Saturday, October 25, 2014

Grazie http://46cento.com/da parte nostra e di Marco Sguaitzer

Posted by MARCO S. – NO ALLA SLA on Wednesday, October 15, 2014

l ultimo post di Marco (che non troverete sul libro…). https://www.facebook.com/marco.sguaitzer/posts/10152443505221376

Posted by MARCO S. – NO ALLA SLA on Sunday, October 5, 2014

http://www.ultimissimemantova.it/leggi_notizia.php?id=4656

Posted by MARCO S. – NO ALLA SLA on Wednesday, October 1, 2014

Ciao Marco! Lottiamo tutti insieme e cerchiamo di difendere a denti stretti l'Assistenza Domiciliare medica ed…

Posted by Giuseppe De Donno on Saturday, September 6, 2014

Riceviamo e pubblichiamo da parte di Marco:wow… quasi 400 "like" in due giorni. e devo ancora invitare la metà degli…

Posted by MARCO S. – NO ALLA SLA on Friday, September 5, 2014

E' possibile effettuare donazioni di qualsiasi importo oppure diventare soci. Quota sociale: 150 euro. Associatevi e unitevi all'avventura!

Posted by MARCO S. – NO ALLA SLA on Wednesday, September 3, 2014

Dona con PayPal suwww.noallasla.itotramite bonifico bancarioBanca Popolare dell'Emilia Romagna filiale 11500 (sede…

Posted by MARCO S. – NO ALLA SLA on Tuesday, September 2, 2014